| Título: | Effective Healthcare Reform Must Include a Patient Perspective |
| Autores: |
Leonard, Kevin J; University of Toronto Dalziel, Sandra; Patient Destiny |
| Fecha: | 2011-12-07 |
| Publicador: | Electronic journal of health informatics |
| Fuente: |
 |
| Tipo: |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion |
| Tema: | eHealth, Health Informatics, Patient eHealth, Patient Empowerment |
| Descripción: | Patient Destiny’s first “day of action” was the One Patient, One Record symposium held April 2009 in Toronto, Ontario, Canada. The one-day event offered a dialogue opportunity between two distinct stakeholders – healthcare personnel and patients. This symposium brought together key healthcare decision makers and service delivery personnel in direct communication with highly motivated and informed patients. There were more than 100 participants in attendance including close to 50 patients and patient representatives, along with invited healthcare personnel.During the day, there were 10 presentations from global leaders focused on the area of electronic health records (EHRs) and the dynamic and innovative role that patients can play in a revolutionized healthcare delivery system. In addition, there was open discussion on five previously prepared questions. These discussions each concluded with a vote (in favour or against) of the question and allowed for detailed comments to be submitted. Herein, we include the rationale for this first day of action to promote eHealth and present voting results summarizing the participants’ varying perspectives. |
| Idioma: | Inglés |
1 Editor's Introduction to this Journal: Advancing Health Informatics and the Use of Information, Knowledge and Communication Technologies in Health Care por Hovenga, Evelyn JS; Health Informatics Research Group, Central Queensland University | 6 Empowering Patients through Personal Health Records: A Survey of Existing Third-Party Web-Based PHR Products por Helmer, Axel; OFFIS,Lipprandt, Myriam,Frenken, Thomas; OFFIS,Eichelberg, Marco; OFFIS,Hein, Andreas; OFFIS, University of Oldenburg |
2 An Encrypted Email Application for Paediatric and Adolescent Mental Health Teleconsultations por Caffery, Liam Joseph; Centre for Online Health, University of Queensland, Brisbane, Australia,Stathis, Stephen; Child and Youth Mental Health Services, Royal Children's Hospital, University of Queensland, Brisbane, Australia,Smith, Anthony C; Centre for Online Health, University of Queensland, Brisbane, Australia | 7 From Troubleshooting to EMR Optimization: IT Support in a General Practice Setting por Tolar, Marianne; Assessment of Technology in Context Design Lab, School of Communication, Simon Fraser University,
Burnaby BC, Canada,Balka, Ellen; Assessment of Technology in Context Design Lab, School of Communication, Simon Fraser University,
Burnaby BC, Canada
Centre for Clinical Epidemiology & Evaluation, Vancouver BC, Canada |
3 Videophone Delivery of Medication Management in Community Nursing por Wade, Victoria Anne; Discipline of Public Health, University of Adelaide, South Australia,Izzo, Jo; Royal District Nursing Service of South Australia,Hamlyn, Jeremy; VidCo | 8 Health Information-seeking Behaviour on the Internet and Health Literacy among Older Australians por Lam, Mary K; The University of Sydney,Lam, Lawrence T; The University of Notre Dame Australia |
4 The use of standard content specifications in a national health interoperability framework por Heard, Sam; University College London | 9 Epidemiological data mining of cardiovascular Bayesian networks por Twardy, Charles R; Clayton School of Information Technology, Monash University,Nicholson, Ann E; Clayton School of Information Technology, Monash University,Korb, Kevin B; Clayton School of Information Technology, Monash University,McNeil, John; Department of Epidemiology & Preventive Medicine, Monash University |
5 A SpatioTemporal Model for Seasonal Influenza por Edlund, Stefan; IBM Almaden Research Center,Bromberg, Michal; Israel Center for Disease Control,Chodick, Gabriel; Maccabi Health Care Services,Douglas, Judith; IBM Almaden Research Center,Ford, Daniel; IBM Almaden Research Center,Kaufman, Zalman; Israel Center for Disease Control,Lessler, Justin; Johns Hopkins School of Public Health,Marom, Rachel; Maccabi Health Care Services,Mesika, Yossi; IBM Haifa Research Center,Ram, Roni; IBM Haifa Research Center,Shalev, Varda; Maccabi Health Care Services,Kaufman, James; IBM Almaden Research Center | 10 Managing archetypes for sustainable and semantically interoperable electronic health records por Garde, Sebastian; Health Informatics Research Group, Central Queensland University; ACACI Austin Health,Hovenga, Evelyn JS; Health Informatics Research Group, Central Queensland University,Gränz, Jana; Health Informatics Research Group, Central Queensland University; University of Applied Sciences Ulm, Germany,Foozonkhah, Shahla; Health Informatics Research Group, Central Queensland University; Tabriz Medical Sciences University, Tabriz, Iran,Heard, Sam; Health Informatics Research Group, Central Queensland University; Ocean Informatics |