| Título: | Empowering Patients through Personal Health Records: A Survey of Existing Third-Party Web-Based PHR Products |
| Autores: |
Helmer, Axel; OFFIS Lipprandt, Myriam Frenken, Thomas; OFFIS Eichelberg, Marco; OFFIS Hein, Andreas; OFFIS, University of Oldenburg |
| Fecha: | 2011-06-15 |
| Publicador: | Electronic journal of health informatics |
| Fuente: |
 |
| Tipo: |
info:eu-repo/semantics/article info:eu-repo/semantics/publishedVersion Peer-reviewed Publication |
| Tema: | Personal Health Records; Electronic Health Record; Empowerment; Standards; Medical information systems; Medical Computer-Assisted Decision Making; Patient Empowerment |
| Descripción: | Empowering people to play an active role in their own healthcare influences their health state positively. PHRs‘ features and functions are key factors for the empowerment of patients, but only little research has been done to date. This survey identifies PHR functions and properties that are relevant for patient empowerment and compiles a list of PHR products that are currently available on the market. Based on a literature review and former research work, a function taxonomy checklist including 6 domains and 58 subgroups of features was created. A list of products was compiled from two public directories that list PHRs and from the result of an explorative search that was performed utilizing various search engines. Together with the PHRs found during the scientific literature review this lead to an adjusted list of 48 products. Every product was analyzed by the usage of a questionnaire, that was sent to the product vendor, the public available information about the product, and whenever possible by the exploratory use of provided test accounts. There has been good support for most of the common features in the structured data, services, security and interface domain, whereas almost none of the PHRs use existing medical standards for the storage and communication of their data. At the present time, PHRs have implemented only basic features allowing only basic patient empowerment. The breakthrough for empowerment will require cost intensive implementations of medical standards to provide interoperability and health services which let the users make a choice for the usage of a PHR. |
| Idioma: | Inglés |
1 Editor's Introduction to this Journal: Advancing Health Informatics and the Use of Information, Knowledge and Communication Technologies in Health Care por Hovenga, Evelyn JS; Health Informatics Research Group, Central Queensland University | 6 From Troubleshooting to EMR Optimization: IT Support in a General Practice Setting por Tolar, Marianne; Assessment of Technology in Context Design Lab, School of Communication, Simon Fraser University,
Burnaby BC, Canada,Balka, Ellen; Assessment of Technology in Context Design Lab, School of Communication, Simon Fraser University,
Burnaby BC, Canada
Centre for Clinical Epidemiology & Evaluation, Vancouver BC, Canada |
2 An Encrypted Email Application for Paediatric and Adolescent Mental Health Teleconsultations por Caffery, Liam Joseph; Centre for Online Health, University of Queensland, Brisbane, Australia,Stathis, Stephen; Child and Youth Mental Health Services, Royal Children's Hospital, University of Queensland, Brisbane, Australia,Smith, Anthony C; Centre for Online Health, University of Queensland, Brisbane, Australia | 7 Health Information-seeking Behaviour on the Internet and Health Literacy among Older Australians por Lam, Mary K; The University of Sydney,Lam, Lawrence T; The University of Notre Dame Australia |
3 Videophone Delivery of Medication Management in Community Nursing por Wade, Victoria Anne; Discipline of Public Health, University of Adelaide, South Australia,Izzo, Jo; Royal District Nursing Service of South Australia,Hamlyn, Jeremy; VidCo | 8 Epidemiological data mining of cardiovascular Bayesian networks por Twardy, Charles R; Clayton School of Information Technology, Monash University,Nicholson, Ann E; Clayton School of Information Technology, Monash University,Korb, Kevin B; Clayton School of Information Technology, Monash University,McNeil, John; Department of Epidemiology & Preventive Medicine, Monash University |
4 The use of standard content specifications in a national health interoperability framework por Heard, Sam; University College London | 9 Managing archetypes for sustainable and semantically interoperable electronic health records por Garde, Sebastian; Health Informatics Research Group, Central Queensland University; ACACI Austin Health,Hovenga, Evelyn JS; Health Informatics Research Group, Central Queensland University,Gränz, Jana; Health Informatics Research Group, Central Queensland University; University of Applied Sciences Ulm, Germany,Foozonkhah, Shahla; Health Informatics Research Group, Central Queensland University; Tabriz Medical Sciences University, Tabriz, Iran,Heard, Sam; Health Informatics Research Group, Central Queensland University; Ocean Informatics |
5 A SpatioTemporal Model for Seasonal Influenza por Edlund, Stefan; IBM Almaden Research Center,Bromberg, Michal; Israel Center for Disease Control,Chodick, Gabriel; Maccabi Health Care Services,Douglas, Judith; IBM Almaden Research Center,Ford, Daniel; IBM Almaden Research Center,Kaufman, Zalman; Israel Center for Disease Control,Lessler, Justin; Johns Hopkins School of Public Health,Marom, Rachel; Maccabi Health Care Services,Mesika, Yossi; IBM Haifa Research Center,Ram, Roni; IBM Haifa Research Center,Shalev, Varda; Maccabi Health Care Services,Kaufman, James; IBM Almaden Research Center | 10 Understanding GP Attitudes Towards A Data Amalgamating Health Informatics System por Knight, John; University of South Australia, Adelaide, Australia,Patrickson, Margaret; University of South Australia, Adelaide, Australia,Gurd, Bruce; University of South Australia, Adelaide, Australia |