| Título: | Complexities in the Provision of Respite Care to Family Carers of Persons with Intellectual Disabilities |
| Autores: |
Mannan, Hasheem; National Institute of Intellectual Disability and Centre for Global Health, Trinity College, Dublin O'Brien, Patricia; National Institute of Intellectual Disability and Centre for Global Health, Trinity College Dublin. Now at Centre for Developmental Disabilities, University of Sydney McConkey, Ray; Institute of Nursing Research, University of Ulster, N. Ireland Finlay, Frieda; National Institute of Intellectual Disability and Centre for Global Health, Trinity College Dublin Lawlor, Anne; National Institute of Intellectual Disability and Centre for Global Health, Trinity College Dublin Harrington, Gerry; National Institute of Intellectual Disability and Centre for Global Health, Trinity College Dublin |
| Fecha: | 2011-10-15 |
| Publicador: | Disability, CBR and Inclusive Development |
| Fuente: |
 |
| Tipo: |
Qualitative, Participatory Action Research |
| Tema: |
Disability and Family Studies Intellectual Disability, respite, family members, |
| Descripción: | PurposeRespite care is generally thought to benefit family carers of persons with intellectual disabilities and is regarded as an important component of family-centred services. However, the complexities associated with the provision of such services, from the carer’s perspective, have been rarely investigated.MethodThis qualitative research study was carried out through a participatory action research process that involved collaboration among researchers and family members as co-researchers. Seven focus groups, involving seventy family carers (fifty mothers, fifteen fathers and five sisters), were held in seven locations across the Republic of Ireland. ResultsThree main themes dominated the discussions. The first theme related to the ambivalence of carers towards using respite services, as expressed in their reluctance to relinquish care-giving for even a short period; the feelings of guilt they experienced; and the greater needs of other carers. The second theme related to the benefits of respite breaks, but these were solely with respect to the carer and other family members, rather than to the person with an intellectual disability. The third theme regarding the quality of provision was dominated by concerns for the care the person received in using the services. ConclusionsRespite care has the potential to make a difference, and these findings call for building much- needed alliances between all members of the family and professionals. This is in order to support one another through the difficulties associated with the redesign of existing respite provision, and the extension of these services to the growing number of carers who require respite breaks.Key wordsIntellectual disability, respite, family members, Irelanddoi 10.5463/DCID.v22i2.22 |
| Idioma: | Inglés |
1 PERCEPTIONS OF PARENTS OF TYPICAL CHILDREN TOWARDS INCLUSIVE EDUCATION por Bhargava, Shruti; Department of Human Development and Family Studies, Faculty of Family and Community Sciences, The Maharaja Sayajirao University of Baroda,Narumanchi, Amruta | 6 Awareness among Family Members of Children with Intellectual Disability on Relevant Legislations in India por Kuppusamy, Bala Baskar; National Institute for Empowerment of Persons with Multiple Disabilities (Ministry of Social Justice & Empowerment, Govt of India),N, Jayanthi Narayan; Consultant in Special Education (Learning & Intellectual Disabilities),N, Deepa Nair; Former Assistant Programme Officer, National Institute for Mentally Handicapped, Secunderabad |
2 IMPACT OF MICRO CREDIT SCHEME FOR PERSONS WITH PHYSICAL DISABILITIES IN HERAT, AFGHANISTAN. por Fiasse, Jean; International Committee of the Red Cross (I.C.R.C.)
8, Rue Sambrée, 1490 Court St Etienne
Belgium | 7 Disability, Art and Potentiality: Reframing Disability as a Metaphor for Potentiality in the Islamic Republic of Iran por Verstraete, Pieter; Katholieke Universiteit Leuven,Van Goethem, Peter |
3 IMPACT OF PHYSICAL THERAPY ON BURDEN OF CAREGIVERS OF INDIVIDUALS WITH FUNCTIONAL DISABILITY por Narekuli, Anushree; DY Patil college of physiotherapy,Raja, Kavitha; Manipal University,Kumaran, Senthil; Manipal University | 8 Role of Self-help Groups in Promoting Inclusion and Rights of Persons with Disabilities por Kumaran, K P; Professor & Head (CMRD)
National Institute of Rural Development (NIRD)
Rajendranagar
Hyderabad - 500 030
India |
4 Health-Related Quality of Life of Nigerian Children with Cerebral Palsy por Tella, Bosede Abidemi; Department of Physiotherapy, College of Medicine, University of Lagos, Idi-Araba, Lagos, Nigeria,Gbiri, Caleb Ademola; Departmet of Physiotherapy, College of Medicine, University of Lagos, Idi-Araba, Lagos, Nigeria,Osho, Oluwaseyi Abigail; Department of Physiotherapy, College of Medicine, University of Lagos, Idi-Araba, Lagos, Nigeria,Ogunrinu, A E; Department of Physiotherapy, College of Medicine, University of Lagos, Idi-Araba, Lagos, Nigeria | 9 Role of NGOs in Identification Camps for Persons with Intellectual Disabilities in India por Kishore, Thomas; University of Hyderabad,Nagar, R K; National Institute for the Orthopaedically Handicapped (NIOH), Kolkata, India |
5 Life Expectancy After Spinal Cord Injury In a Developing Country-A Retrospective Study At CRP, Bangladesh. por Razzak, Abdur; Centre for the Rehabilitation of the Paralysed (CRP), Savar, Dhaka, Bangladesh,Helal, Sayeed Uddin; Centre for the Rehabilitation of the Paralysed (CRP), Savar, Dhaka, Bangladesh,Nuri, Reshma Parvin; Centre for the Rehabilitation of the Paralysed (CRP), Savar, Dhaka, Bangladesh | 10 Financial Aid for the Rehabilitation of Individuals with Spinal Cord Injuries in Bangladesh por Nahar, Nazmun; Bangladesh Health Professions Institute (BHPI),Nuri, Mst Reshma Parvin; Centre for the Rehabilitation of the Paralysed (CRP),Mahmud, Ilias; James P Grant School of Public Health, BRAC University
International Centre for Evidence in Disability (ICED), London School of Hygiene and Tropical Medicine (LSHTM) |